Public Policy

One of the Alliance’s most important missions is to advocate for aging research by working with legislators, health experts and other like-minded organizations. Our public policy efforts are summarized here.

ACT-AD is a coalition of committed national organizations seeking to accelerate the development of potential cures and treatments to slow, halt or reverse the progression of Alzheimer’s disease through research. For more information, please visit here.

Press Room

Experts Explore Federal Agency Collaborations to Close Alzheimer’s Disease Research Gaps at ACT-AD Coalition Annual Meeting

Author: Noel Lloyd

Date: November 16th, 2016

Today, senior representatives from the U.S. Food and Drug Administration (FDA) and the National Institute on Aging at the National Institutes of Health (NIH) joined with advocates, federal colleagues, researchers, and industry to explore collaborations for advancing the most up-to-date knowledge in Alzheimer’s disease research. 


Leading Experts Assess the Current State of Alzheimer’s Disease Therapeutic Development

Author: Noel Lloyd

Date: September 16th, 2015

ACT-AD Coalition Hosts Its Eighth Annual Meeting


Leading Experts Discuss Clinical Meaningfulness in Drug Development for Early Alzheimer’s Disease

Author: Noel Lloyd

Date: November 6th, 2014

ACT-AD Coalition Hosts Its 7th Annual Meeting


Top Alzheimer's Advocate to Join Alliance for Aging Research

Date: November 8th, 2011

Sue Peschin, a leading advocate for public policies supporting Alzheimer’s disease research and services for affected families, will join the Alliance for Aging Research beginning January 2012.


Baby Boomer Attitudes on Alzheimer's Disease

Date: April 27th, 2006

First Major Survey of Baby Boomer Attitudes on Alzheimer's Shows Fear About Their Own Future and Frustration Over Pace of New Drug Approvals

Publications



Blog

Alzheimer’s Association International Conference Recap

Author: Ryne Carney

Date: August 10th, 2017

Last month, the Alzheimer’s Association International Conference was held in London, England. While we are still years away from discovering a cure, the conference highlights the steady efforts of researchers and scientists to better understand the devastating disease.


Webinar on Research Framework for Alzheimer's Disease/July 25

Author: Breanna Bishop

Date: July 20th, 2017

On Tuesday, July 25, the Accelerate Cure/Treatments for Alzheimer’s Disease (ACT-AD) Coalition will hold a one-hour webinar on Alzheimer's disease research framework, featuring expert perspectives.


Alzheimer's Disease Begins Before Symptoms Start, Researchers Say

Author: Breanna Bishop

Date: June 19th, 2017

Researchers at the Keck School of Medicine of the University of Southern California may have discovered Alzheimer's disease in its earliest stage. Their findings provide greater insight into the disease and could offer new ways to treat the devastating disease.


ACT-AD Coalition's Webinar on Symptomatic Relief for Alzheimer's Available Now

Author: Breanna Bishop

Date: March 24th, 2017

On March 15, the Accelerate Cure/Treatments for Alzheimer's Disease (ACT-AD) Coalition hosted a webinar on symptomatic relief for Alzheimer's disease. An archived video of the webinar is now available. 


Webinar on Symptomatic Relief for Alzheimer's/March 15

Author: Breanna Bishop

Date: March 6th, 2017

On Wednesday, March 15, at 12 p.m. EST, the Accelerate Cure/Treatments for Alzheimer’s Disease (ACT-AD) Coalition will hold a one-hour webinar on symptomatic relief for Alzheimer’s disease, featuring expert presentations.


ACT-AD Coalition Holds Ninth Annual Meeting

Author: Breanna Bishop

Date: November 22nd, 2016

On November 16, the ACT-AD (Accelerate Cure/Treatments for Alzheimer’s Disease) Coalition hosted its Ninth Annual FDA/Alzheimer’s Disease Allies Meeting in North Bethesda, Md., to discuss the current state of Alzheimer’s disease treatment development.


ACT-AD Will Host Ninth Annual Meeting

Author: Breanna Bishop

Date: October 31st, 2016

The ACT-AD Coalition will host its Ninth Annual FDA/Alzheimer's Disease Allies Meeting on November 16, 2016. 


ACT-AD Holds Webinar on Clinical Meaningfulness in Alzheimer’s Disease

Author: Noel Lloyd

Date: July 25th, 2016

On July 19, 2016, the ACT-AD Coalition presented an one-hour webinar on clinical meaningfulness in Alzheimer’s disease.


Alliance's Bens Speaks at Capitol Hill Briefing on Precision Medicine

Author: Noel lloyd

Date: June 24th, 2016

On Wednesday, the Alliance’s Vice President of Public Policy Cynthia Bens spoke at a Congressional Life Sciences Caucus briefing about precision medicine on Capitol Hill.


We Bring People and Organizations Together to Advance Science

Author: Noel Lloyd

Date: May 13th, 2016

A major way the Alliance advances science is through building coalitions of diverse organizations and individuals to bring visibility and support to health research, with the ultimate goal of improving the healthy length and quality of life for everyone. Learn more. 


Alzheimer's Disease and Personalized Medicine Webinar/February 29

Author: Noel Lloyd

Date: February 8th, 2016

On February 29, the ACT-AD coalition holds a webinar about Alzheimer's disease and personalized medicine. 


Study Looks at Alzheimer's Potential Impact on China

Author: Noel Lloyd

Date: January 21st, 2016

A new study discusses the potential long-term impacts China could face from Alzheimer's disease.


New Enewsletters on Alzheimer's Disease and Healthspan Now Available

Author: Noel Lloyd

Date: November 30th, 2015

This is a quick post to give you a heads up that the latest editions of the ACT-AD Coalition and Healthspan Campaign enewsletters are now available.  


HROTW: Alzheimer's: The Race to the Cure

Author: Noel Lloyd

Date: November 6th, 2015

Our Health Resource of the Week is a short video that focuses on how researchers are looking for ways to stop Alzheimer's disease.


Expert Dr. Rudolph E. Tanzi Optimistic about the Future of Alzheimer's Research

Author: Noel Lloyd

Date: October 27th, 2015

At last month's annual dinner, the Alliance gave eminent Harvard researcher Rudolph E. Tanzi. Ph.D., the Silver Innovator Award for spearheading his research lab’s “Alzheimer’s-in-a-dish model,” a revolutionary 3-D discovery that gives new hope for the development of therapies to treat and cure the condition. 


ACT-AD Coalition Holds Eighth Annual Meeting

Author: Noel Lloyd

Date: September 18th, 2015

On September 16 the ACT-AD (Accelerate Cure/Treatments for Alzheimer's Disease) Coalition hosted its Eighth Annual FDA/Alzheimer’s Disease Allies Meeting in North Bethesda, Md.


Cynthia Bens Comments from MDUFA and PDUFA Meetings

Author: Noel Lloyd

Date: July 16th, 2015

Alliance Vice President of Public Policy Cynthia Bens took part in two important meetings at the U.S. Food and Drug Administration this week.


Webinar: Targets for the Next Generation of Alzheimer’s Disease Treatment

Author: Noel Lloyd

Date: May 11th, 2015

On April 27 the Alliance's ACT-AD Coalition held a webinar on the future of research, therapeutic development, and treatment of Alzheimer’s disease.


NIA Seeks Volunteers for Alzheimer’s Disease Clinical Trials

Author: Noel Lloyd

Date: May 5th, 2015

Right now across the U.S. there are more than 150 Alzheimer’s disease and related clinical trials being conducted.


World Alzheimer’s Month: Improving Prevention and Treatment

Author: Bryan Luce and Jean Slutsky

Date: September 23rd, 2014

This is a guest post from the Patient-Centered Outcomes Research Institute on World Alzheimer's Month. 


A Birthday Party to Celebrate Aging…and the Research Behind It

Author: Noel Lloyd

Date: June 4th, 2014

Talaya Waller turns 29 this month, and she’s throwing a big party in Washington, D.C., on June 21.


Big Boost for Alzheimer's

Author: Sue Peschin

Date: February 9th, 2012

This week’s press event announcing an immediate $50 million infusion of NIH funding to Alzheimer’s research—along with commitments to include an additional $80 million in research dollars and $26 million in services and supports in the President’s FY 2013 budget—was monumental on a number of fronts.


Are we there yet?

Author: Cynthia Bens

Date: January 6th, 2012

Many of you may still have this phrase ringing in your ears if you traveled with children for any length of time this past holiday season. Representatives from the ACT-AD Coalition, chaired by the Alliance for Aging Research, heard these same words almost two years ago, not uttered from the mouths of babes, but rather by prominent officials at the Food and Drug Administration (FDA) in a conversation regarding evidence to support the use of biomarkers for Alzheimer’s disease in clinical trials for “disease-modifying” therapies.


Thankful for More Years - And Hopeful for Better Ones

Author: Dan Perry

Date: November 22nd, 2011

Americans are living longer than ever – and that’s something to be thankful for. As Time points out, our oldest population is getting older as well.


The Alzheimer's Epidemic Marches On

Author: Guest Contributor

Date: March 26th, 2009

Alzheimer’s disease has taken an unfortunate step in front of the national news spotlight as of late. The last two evenings, I have seen features on the evening news highlighting the devastating effects of the disease both as a public health epidemic and as a personal, family struggle.

Newsletter

News-At-A-Glance

Date: December 13th, 2016

2016 has been a busy year at the Alliance. Learn more about what's been happening!


A Birthday Party to Celebrate Aging Research

Date: July 16th, 2014

Talaya Waller turned 29 and threw a big party. But it wasn't just about her birthday.


Helping Stop a Devastating Disease: The ACT-AD Coalition Continues its Important Work in Alzheimer's Disease

Date: February 1st, 2013

Alzheimer's disease is a slow, dehumanizing, and fatal disease that strikes 1 in 8 people over the age of 65. While it's typically thought of as a disease that affects memory, it goes well beyond memory loss and eventually leads to death.
 

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