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Alliance in the News, Feature ArticleFollowing Katz at FDA
February 11, 2013 | Steve Usdin, Washington Editor
Related topics: Alzheimer's Disease Drug Development PolicyOn February 11, 2013, Steve Usdin, Washington Editor of BioCentury, published an article in BioCentury The Bernstein Report on Business focused on the future of the FDA’s Division of Neurology Products following the expected retirement later this year of the current Division Director, Russell Katz, M.D. Representatives from the biopharmaceutical industry and the patient advocacy community were interviewed for this article, including Daniel Perry, President & CEO of the Alliance for Aging research and Chair of the ACT-AD Coalition. Mr. Perry highlighted ACT-AD’s positive relationship with Dr. Katz and expressed hope that Dr. Katz’s successor will approach the review of therapies for Alzheimer’s disease with similar openness and flexibility.
To read the BioCentury article, click here.
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Get Mad ColumnHelping Stop a Devastating Disease: The ACT-AD Coalition Continues its Important Work in Alzheimer's
Winter 2013
Related topics: Access to Breakthroughs Alzheimer's Disease Drug Development Health PolicyAlzheimer's disease is a slow, dehumanizing, and fatal disease that strikes 1 in 8 people over the age of 65. While it's typically thought of as a disease that affects memory, it goes well beyond memory loss and eventually leads to death. -
Document, Feature ArticleTranslating Innovation to Impact
December 17, 2012 | Katie Maslow, MSW, Scholar-in-Residence at the Institute of Medicine
Related topics: Aging Research Alzheimer's Disease Policy Quality of Care ResearchThis white paper presents the findings and recommendations from a review of the state of the art non-pharmacological treatments and care practices for people with Alzheimer's or other dementias and their family caregivers. It is intended to support deliberations by the Advisory Council on Alzheimer's Research, Care and Services, the U.S. Department of Health & Human Services (HHS) and other government and private organizations about hot to make effective non-pharmacological treatments and care practices available to people who will benefit from then. Its development resulted from a public-private partnership between AoA and the Alliance for Aging Research, with funding from the Metlife Foundation. -
Get Mad Column, NewslettersAlzheimer’s Treatment and Care at a Crossroads: Pursuing All Avenues to Provide Relief
If you or a loved one has been diagnosed with Alzheimer’s disease, you’ve most likely wondered if there are any ways to relieve some of the burden of the disease, in addition to the pills to manage its symptoms. For many diseases like heart disease and diabetes, changes to diet and exercise are as high on health care providers list of advice for patients as a prescription for medication, but this isn’t the case with how they approach Alzheimer’s disease. -
Alliance in the News, Alliance Views, VideoDan Perry on BioCentury This Week: Alzheimer's Research
In a March 18th interview with BioCentury This Week, Alliance for Aging Research President & CEO Daniel Perry shares his thoughts on U.S. funding of Alzheimer’s research. Perry also calls for the U.S. Food and Drug Administration to adopt biomarkers and other tools to detect and treat Alzheimer's disease earlier. -
Alliance in the News, Science in the SpotlightAlzheimer’s Biomarkers are Ready for Research
March 7, 2012
Related topics: Aging Research Alzheimer's Disease Brain Health Drug Development Drug Safety Health Medical Innovation Policy ResearchIn a March 1st interview, Dr. John Morris, co-chair of the Alzheimer's Disease Biomarker Expert Working Group (convened by the Alliance for Aging Research), explains what biomarkers are and how they will help research in the field of Alzheimer's disease and related dementia.
John C. Morris is the Harvey A. and Dorismae Hacker Friedman Distinguished Professor of Neurology, Professor of Pathology and Immunology, Professor of Physical Therapy, and Professor of Occupational Therapy at Washington University. He also is the Director and Principal Investigator of the Alzheimer's Disease Research Center.
For More info on the promise of biomarkers in Alzheimer's, click here. -
BrochureLa Enfermedad de Alzheimer: Ayudandote a Ayudar a un Ser Querido
In order to educate family caregivers on how to care for themselves while caring for a loved one with Alzheimer’s disease, the Alliance for Aging Research created this workshop kit. This translated workshop kits assist community groups in hosting workshops for Spanish-speaking family caregivers. -
BrochureLa Enfermedad de Alzheimer: Ayudándote a Ayudar a un Ser Querido - Guía para Líderes
El propósito de este taller es educar a los familiares encargados de cuidar a
un ser querido con la enfermedad de Alzheimer a darles el mejor cuidado
posible sin descuidar sus propias necesidades. Esta Guía para Líderes servirá
de guía para los que trabajan en el ambiente de la salud, personal médico,
coordinadores comunitarios, etc, y les ayudará con la conducción del taller. -
BrochureLa Enfermedad de Alzheimer: Ayudándote a Ayudar a un Ser Querido - Guía paraQuienes Cuidan a Personas con la Enfermedad de Alzheimer
Como familiar y persona encargada de cuidar a alguien con
la enfermedad de Alzheimer, tienes demasiadas tareas y
mucho que hacer. Hay tanto por aprender, tantas cosas que
planear, tantas preocupaciones. Por eso necesitas leer ésta
guía, no solamente por la persona a quien cuidas, si no
además por tí mismo. -
Feature ArticleSearching for Answers & Hope Learning About a Disease that Steals Memories
Summer 2010 | Alliance for Aging Research
Related topics: Alzheimer's Disease Brain Health Caregiving HealthFirst they told her she had Alzheimer’s disease. Next they suggested that the medications they had prescribed to control her anxiety and depression were the cause. Then they told her it was Parkinson’s. It was years before doctors finally figured out what was making Susan Grant’s mind slip away. -
Brochure, ReportThe Silver Book: Chronic Disease and Medical Innovation--Neurological Disease
November 2009
Related topics: Aging Research Alzheimer's Disease Caregiving Health Parkinson's Disease ResearchThe first volume of The Silver Book was launched in 2006 and has quickly become a trusted resource for health policy practitioners. The Silver Book®: Neurological Disease is the latest volume in this important collection. Each section in the volume includes charts, statistics, and key findings that together paint a comprehensive picture of the burden of neurological disease, focusing on Alzheimer's and Parkinson's diseases, and the tremendous potential of innovation. Much of the data focuses on the older population. -
Alliance ViewsBattling Health Disparities: Closing the Gaps
Summer 2009
Related topics: Alzheimer's Disease Caregiving Health Osteoporosis Quality of Care Women's HealthThanks to enormous advances in public health and exciting breakthroughs in medical innovation, over the past century Americans have seen dramatic gains in health and longevity. The United States currently spends more on health care than any other nation and for most people, this means access to one of the best health care systems in the world. Unfortunately, it doesn’t benefit all people equally and the reality is that most minorities have less access to care, fewer options for prevention and treatment, and higher rates of disease and illness. -
Get Mad ColumnRestoring a Commitment to Medical Research
Summer 2009
Related topics: Access to Breakthroughs Aging Research Alzheimer's Disease Cardiovascular Disease Diabetes Federal Funding Policy Vision LossInvestigators supported by the National Institutes of Health (NIH) are on the cusp of research breakthroughs that may enhance their ability to predict and intervene earlier in the processes of many age-related chronic diseases. -
Feature ArticleNavigating Health Care Transitions: Tools for Information Sharing
At some point in our lives, most of us will face an illness where we have to deal with many different health care professionals—often spread out in different locations and settings across the health care system. Our primary physician may refer us to a specialist, or we may have an emergency that sends us to the ER and later requires that we be admitted to the hospital or see our primary physician for follow-up. We may even have to move from the hospital to a rehabilitation or long-term care facility. -
Report2009 Task Force on Aging Research Funding
May 2009
Related topics: Aging Research Alzheimer's Disease Arthritis Brain Health Cancer Cardiovascular Disease Caregiving Diabetes Federal Funding Geriatric Training Health Incontinence Medical Innovation Men's Health Mental Health Osteoporosis Other Diseases of Aging Parkinson's Disease Persistent Pain Policy Research Stroke Vision Loss Women's HealthThe 2009 Task Force on Aging Research Funding--more than 65 non-partisan disease groups, patient advocates, and foundations--urges Congress and the President to restore a national commitment to medical research on behalf of America's aging population. This year's report of the Task Force calls for a at least a 7% increase in funding for the National Institutes of Health in FY 2010. It also presents data on the burden of diseases and conditions that predominately affect older Americans, highlights the emerging research the NIH is doing to decrease these burdens, and serves as a resource for policymakers working to establish the funding levels necessary to advance healthy aging. -
BrochureLiving with Alzheimer's Booklet
This booklet is part of the larger Living with Alzheimer’s: Personal Health Organizer. It provides detailed information to guide you through using the worksheets, tips on finding help in your community, and a list of resources for more information. -
BrochureLiving with Alzheimer's Worksheets
These worksheets are part of the larger Living with Alzheimer’s: Personal Health Organizer. They are designed to help you record important information throughout your diagnosis. -
BrochureLiving with Alzheimer's: Personal Health Organizer
This 3-ring, hardcover binder includes the necessary tools you need to sort through all the Alzheimer's information you come across and keep track of only that which is relevant to you. Since no one experiences Alzheimer’s in the exact same way, your binder can be organized in a way that best fits your needs. This binder is designed to help the person who has just been diagnosed, but many of the worksheets can be used together with family members or by caregivers of those who are in later stages of the disease. -
ReportAdvancing Alzheimer's Disease Drug Review as a National Priority
The aging of the baby boom generation continues to put more Americans at increased risk for Alzheimer's disease (AD). The need for meaningful treatment options to fight the destruction caused by AD has never been greater. This article highlights the pivotal role that the U.S. Food and Drug Administration will play in making the review of emerging AD therapies a national priority and ways that various stakeholders are engaging with regulators to meet the challenges posed by the growing AD epidemic.
To read more, visit: Alzheimer's & Dementia -
Feature ArticleStudy Shows Benefits of Flowers for Older Adults
“Flowers make people better, happier, and more helpful; they are sunshine, food, and medicine to the soul.” American botanist Luther Burbank may have been onto something when he proclaimed this in the early 20th century. Many decades later, studies have found that flowers may actually have health benefits—especially for older adults. A 2001 Rutgers University study found that flowers eased depression, improved social interaction, and enhanced memory in adults age 55 and older. The study was partially funded by the Society of American Florists. -
Feature ArticleHelping Alzheimer's Caregivers Take Care of Their Own Health
The role of caregiver for a loved one diagnosed with Alzheimer’s disease can be a stressful one. Caring for someone with a memory-related disease is more stressful than helping someone with a physical injury. Due to the demands of caring for someone with Alzheimer’s, caregivers tend to neglect their own health care and well-being. One study shows that up to 47 percent of family caregivers experience depression, but with the right resources, caregivers can successfully balance their time and provide the care their loved ones need. -
DocumentKey Phone Numbers Worksheet
A support network can help you accomplish your tasks as a caregiver by offering physical and emotional assistance. Look for support through family, friends, and the community. Use this worksheet to record these key contacts as well as those from your loved one's health care team. -
DocumentClinical Trial Worksheet
While there is no cure for Alzheimer's disease, there are drugs that may improve or stabilize symptoms. New drugs are also under development that offer hope for Alzheimer's patients, and clinical trials test whether these treatments are safe and effective. If you haven't already, you may want to consider enrolling your loved one in a clinical trial. This worksheet is a log that can help you keep track of clinical trials that you find. -
DocumentFinancial & Legal Checklist
By starting the financial and legal planning process now, you can make sure that your loved one is cared for as their disease progresses. It's important for you to start this process early, because Alzheimer's disease will gradually make it harder for your loved one to participate in planning. Use this checklist to get you started. -
DocumentMy Personal Schedule Worksheet
As Alzheimer's disease progresses, your loved one will need more and more care. While you may feel that you don't have time to think about yourself, it is important to remember your own health and well-being. By exercising, thinking about your health, and giving yourself time to relax, you will stay healthier and be able to spend more time with your loved one. Use this log to keep track of health care appointments, your exercise schedule, social engagements, etc. -
DocumentMedication List Worksheet
Your loved one may take many medications for Alzheimer's disease and other health conditions. Keeping track of them helps the health care team make sure the medications are working well together, and find possible drug interactions. You can use this medication list worksheet to keep all of the information about your loved one's medications in one place. -
DocumentHealth Care Appointment Worksheet
Taking your loved one to health care appointments may become difficult at times. If you prepare for appointments by writing down questions and scheduling the appointments at a good time for your loved one, you can make sure that the appointment goes as smoothly as possible. Use this worksheet to record information about the appointment so that it's all in one place. -
DocumentHealth Journal Worksheet
It's useful to keep a health journal so you can ensure that your loved one's health care team is able to provide the best care possible. By keeping track of day-to-day health information that only you may observe, you can provide valuable information to your loved one's health care team. A journal also makes it easy to record information about Alzheimer's disease and other conditions your loved one may have, so you can make the most of your time at appointments and be sure not to forget anything. -
BrochureAlzheimer's Disease: Helping Yourself Help a Loved One - Caregiver Workbook
This caregiver workbook provides the information, resources, and tools that caregivers need to develop personalized action plans and to take better care of their loved ones and themselves. The workbook includes worksheets, checklists, and other tools on important issues such as making your home safe, dealing with financial planning, and keeping a health journal. -
BrochureAlzheimer's Disease: Helping Yourself Help a Loved One - Caregiver Resources
As a family caregiver of someone with Alzheimer's, you have a lot on your plate. There's so much to learn about, so much to plan, and so much to worry about. This guide provides some of the many resources that can help you take care of your loved one, as well as yourself. -
BrochureAlzheimer's Disease: Helping Yourself Help a Loved One - Leader's Guide
This leader's guide helps facilitate a workshop to educate family caregivers on how to best care for a loved one with Alzheimer's disease while also taking care of themselves. This is an updated version of the Leader's Guide and includes the latest information on treatments and research. -
BrochureAlzheimer's Disease: Helping Yourself Help a Loved One - Workshop Kit
This kit includes all of the resources necessary to conduct a workshop for caregivers of those recently diagnosed with Alzheimer's disease. It is an updated version of the Alliance's award-winning kit from 2006 and includes additional information on treatment and research, as well as a brand new caregiver workbook. -
Fact SheetA Quick Look At Alzheimer's- Outreach Partners
The following organizations are helping promote A QUICK LOOK AT ALZHEIMER'S: Four 'Pocket' Films to Increase Understanding of a 21st Century Epidemic. -
Alliance ViewsStopping Alzheimer's: What Can You Do
With the aging of the population, experts warn that Alzheimer’s disease will reach epidemic proportions by mid-century, creating massive and unsustainable burdens in terms of health care costs, overwhelmed families, and millions of lives tragically lost to a devastating disease. -
Feature ArticleBetter Treatments Sought for Neurological Diseases
William Shakespeare famously described life’s seven stages, none of them in especially happy terms. The final stage of old age is “second childishness and mere oblivion/Sans teeth, sans eyes, sans taste, sans everything.” -
DocumentResearch Advances in Neurodegenerative Diseases
In the third of four briefings looking at the growing burden of chronic diseases and the promise of medical innovation, Dr. Growdon presented on Research Advances in Neurodegenerative Diseases: Alzheimer & Parkinson. His presentation slides are available here. -
DocumentThe Societal Burden of Alzheimer's Disease
In the third of four briefings looking at the growing burden of chronic disease and the promise of medical innovation, Jennifer Zeitzer of the Alzheimer's Association presented on The Societal Burden of Alzheimer's Disease. Her presentation slides are available here. -
Report2007 Task Force Report on Aging Research Funding
April 2007 | Alliance for Aging Research
Related topics: Aging Research Alzheimer's Disease Arthritis Cancer Cardiovascular Disease Caregiving Diabetes Federal Funding Geriatric Training Health Incontinence Medical Innovation Men's Health Mental Health Osteoporosis Other Diseases of Aging Parkinson's Disease Persistent Pain Prevention Stroke Vision Loss Women's HealthThe 2007 Task Force on Aging Research Funding--more than 85 non-partisan disease groups, patient advocates, and foundations--urges Congress and the President to chart a better course for medical research on behalf of America's aging population. This year's report of the Task Force calls for a 6.7% increase in funding for the National Institutes of Health in FY 2008. It also presents data on the burden of 27 diseases and conditions that predominately affect older Americans, highlights some of the exciting work the NIH is doing to decrease these burdens, and serves as a resource for policymakers working to establish the funding levels necessary to advance healthy aging. -
BrochureAlzheimer's Disease: Workshop Kit
In order to educate family caregivers on how to care for themselves while caring for a loved one with Alzheimer’s disease, the Alliance for Aging Research created this workshop kit. The workshop kits assist community groups in hosting workshops for family caregivers. -
BrochureLa Enfermedad de Alzheimer: Ayudandote a Ayudar a un Ser Querido - Guia para Quienes Cuidan a Personas con la Enfermedad de Alzheimer
Como familiar y persona encargada de cuidar a alguien con la enfermedad de Alzheimer, tienes demasiadas tareas y mucho que hadar. Hay tanto por aprender, tantas cosas que planear, tantas preocupaciones. Por eso necesitas leer esta guia, no solamente por la persona a quien cuidas, si no ademas por ti mismo. You may also purchase this as part of the larger Alzheimer's Disease Workshop Kit. -
BrochureAlzheimer's Disease: Helping Yourself Help a Loved One - Leader's Guide
October 2006 | Alliance for Aging Research
Related topics: Alzheimer's Disease Caregiving Health Women's HealthThis leader's guide helps facilitate a workshop to educe family caregivers on how to best care for a loved one with Alzheimer's disease while effectively taking care of their own needs. This guide will provide guidance to leaders (healthcare leaders, community outreach coordinators, etc.) for conducting the workshop. -
BrochureAlzheimer's Disease: Helping Yourself Help a Loved One - Resources for Caregivers
October 2006 | Alliance for Aging Research
Related topics: Alzheimer's Disease Caregiving Health Women's HealthAs a family caregiver of someone with Alzheimer's disease, you have a lot on your plate. There's so much to learn about, so much to plan, so much to worry about. But you need to read this guide--not only for the person you're caring for, but for yourself. You may also purchase this as part of the larger Alzheimer's Disease Workshop Kit. -
BrochureAlzheimer's Disease: Helping Yourself Help a Loved One - Financial Checklist
October 2006 | Alliance for Aging Research
Related topics: Alzheimer's Disease Caregiving Women's HealthAlzheimer's disease interferes with many daily life functions, including financial tasks. This can be frustrating for the person with Alzheimer's, and can have both short-term and long-term ramifications. This checklist will help you ensure that your loved one's financial matters are in check. You may also purchase this as part of the larger Alzheimer's Disease Workshop Kit. -
Get Mad ColumnMake Alzheimer's a National Priority
It’s a disease that is universally fatal; there is no cure at present; and one out of 10 people over 65 will be diagnosed with it. -
ReportThe Silver Book:
Chronic Disease and Medical Innovation in an Aging Nation
March 2006 | Alliance for Aging Research
Related topics: Alzheimer's Disease Cancer Cardiovascular Disease Diabetes Federal Funding Health Medical Innovation Parkinson's Disease Research StrokeThe Silver Book is a unique almanac of references that the Alliance has compiled to spotlight the impact of chronic disease on our aging population and health care system, and the significant impact medical breakthroughs will have on future health care use and expenditures. Much of the information on this topic is buried in dense and detailed reports and peer-reviewed papers and is spread out amongst many important publications. The Silver Book brings together statistics and data culled from over 130 of these reports and articles, from more than 85 agencies, organizations, and experts. The information is presented in an easy-to-use format that we hope brings it to the fingertips of those shaping policy.
The Silver Book is also available on-line in a searchable database that is regularly updated. Visit The Silver Book On-line to find the latest data, download presentation slides, submit data, and find-out about Silver Book events. -
Science in the SpotlightNew Frontiers in Battle Against Alzheimer's
New Alzheimer's research is making dramatic strides in treating one of the most common - and feared - forms of dementia. -
Science in the SpotlightAlzheimer's Disease: The Cruelest Thief
Alzheimer's is the cruelest of the diseases that strike the elderly. -
Science in the SpotlightA Shot of Hope on the Alzheimer's Front
This is not the case of the mouse that roared, but instead the one where the mouse stayed plaque-free.