Publications

This page features brochures, newsletters, white papers, videos, and other resources devoted to the latest scholarship in aging research, age-related diseases and conditions, and living healthier, longer. Many publications are also available in hard copy

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Featured Publication



DVD

A Quick Look at Alzheimer's: Pocket Film - The Genetics of Alzheimer's

Author: Alliance for Aging Research

Date: March 1st, 2011

The latest in a series of animated films that explain the essence of the disease and its public health implications, The Genetics of Alzheimer's explores the role of genes in developing the disease. These films are designed to increase understanding in order to reduce stigma, improve care and help strengthen the public fight against this challenging disease.




Workshop Kit

Alzheimer's Disease: Helping Yourself Help a Loved One—Workshop Kit

Date: April 1st, 2008

This workshop kit is designed for community leaders in order to provide all of the tools necessary to conduct a workshop/seminar for family caregivers.  It contains:

  • A leaders' guide with tips and instructions on conducting a workshop, as well as the latest information on treatments and research
  • A caregiver workbook that helps caregivers develop a personalized action plan to take better care of their loved ones and themselves
  • A caregiver brochure that provides some of the many resources that will help caregivers form a network of support and take care of themselves
  • A DVD that shares the story of a family dealing with Alzheimer's




Brochure

Alzheimer's Disease: Helping Yourself Help a Loved One—Caregiver Brochure

Date: April 1st, 2008

This brochure provides some of the many resources that will help you form a network of support and take care of yourself, while taking care of your loved one.  The brochure is also availabe in Spanish.

You may also want to download this caregiver workbook that helps caregivers develop a personalized action plan to take better care of their loved ones and themselves.




Brochure

Alzheimer's Disease: Helping Yourself Help a Loved One—Leader's Guide

Date: April 1st, 2008

This leader's guide gives tips and instructions for community leaders on how to conduct a workshop/seminars for caregivers of loved ones with Alzheimer's disease.  It also shares the latest information on treatments and research.  The guide is also available in Spanish.

It is part of a larger workshop kit for community and health leaders.






Document

Translating Innovation to Impact: Pre-reads

Date: June 1st, 2012

On June 28, 2012 the Alliance for Aging Research and its project partner the U.S. Administration on Aging (AoA), convened Translating Innovation to Impact, a one-day working meeting to review the state of research into evidence-based interventions to help people with Alzheimer’s remain healthy and independent in the community while reducing the stress on their caregivers.

This document provides the agenda and pre-reads for that important meeting.



Report

Translating Innovation to Impact: Evidence-based interventions to support people with Alzheimer's disease and their caregivers at home and in the community

Author: Alliance for Aging Research, Administration on Aging, MetLife Foundation

Date: June 1st, 2012

This white paper presents the findings and recommendations from a review of the state of the art non-pharmacological treatments and care practices for people with Alzheimer's or other dementias and their family caregivers. It is intended to support deliberations by the Advisory Council on Alzheimer's Research, Care and Services, the U.S. Department of Health & Human Services (HHS) and other government and private organizations about how to make effective non-pharmacological treatments and care practices available to people who will benefit from then. Its development resulted from a public-private partnership between AoA and the Alliance for Aging Research, with funding from the Metlife Foundation. Download the white paper below.




Presentation

The Societal Burden of Alzheimer's Disease

Author: Jennifer Zeitzer

Date: September 1st, 2007

In the third of four briefings looking at the growing burden of chronic disease and the promise of medical innovation, Jennifer Zeitzer of the Alzheimer's Association presented on The Societal Burden of Alzheimer's Disease. Her presentation slides are available here.



Brochure

Alzheimer's Disease: Helping Yourself Help a Loved One--Caregiver Workbook

Date: April 1st, 2008

This workbook s an interactive resource that helps caregivers develop a personalized action plan to take better care of their loved ones and themselves. It includes worksheets on important issues such as making your home safe, preparing for a health care appointment, keeping a health journal, and dealing with financial planning.

The worksheets are useful tools for getting organized and keeping track of a lot of the information that comes with caring for someone with Alzheimer's disease. You can download and print out extra copies of these worksheets by clicking the links below:

You may also want to download this caregiver brochure which provides some of the many resources that will help you form a network of support and take care of yourself, while taking care of your loved one.



Fact Sheet

Alzheimer's Disease Workbook: Health Journal Worksheet

Date: April 1st, 2008

It's useful to keep a health journal so you can ensure that your loved one's health care team is able to provide the best care possible. By keeping track of day-to-day health information that only you may observe, you can provide valuable information to your loved one's health care team. A journal also makes it easy to record information about Alzheimer's disease and other conditions your loved one may have, so you can make the most of your time at appointments and be sure not to forget anything.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease: Medication List Worksheet

Date: April 1st, 2008

Your loved one may take many medications for Alzheimer's disease and other health conditions. Keeping track of them helps the health care team make sure the medications are working well together, and find possible drug interactions. You can use this medication list worksheet to keep all of the information about your loved one's medications in one place.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease Workbook: Health Care Appointment Worksheet

Date: April 1st, 2008

Taking your loved one to health care appointments may become difficult at times. If you prepare for appointments by writing down questions and scheduling the appointments at a good time for your loved one, you can make sure that the appointment goes as smoothly as possible. Use this worksheet to record information about the appointment so that it's all in one place.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease: Clinical Trial Worksheet

Date: April 1st, 2008

While there is no cure for Alzheimer's disease, there are drugs that may improve or stabilize symptoms. New drugs are also under development that offer hope for Alzheimer's patients, and clinical trials test whether these treatments are safe and effective. If you haven't already, you may want to consider enrolling your loved one in a clinical trial. This worksheet is a log that can help you keep track of clinical trials that you find.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease Workbook: Financial & Legal Checklist

Date: April 1st, 2008

By starting the financial and legal planning process now, you can make sure that your loved one is cared for as their disease progresses. It's important for you to start this process early, because Alzheimer's disease will gradually make it harder for your loved one to participate in planning. Use this checklist to get you started.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease Workbook: Home Safety Checklist

Date: April 1st, 2008

Alzheimer's disease progresses differently in everyone, but eventually it will affect your loved one's independence. The typical home environment may become unfamiliar and dangerous, but there are steps you can take to make the home less stressful. Use this checklist to make sure that your loved one's residence is safe.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease Workbook: Personal Schedule Worksheet

Date: April 1st, 2008

As Alzheimer's disease progresses, your loved one will need more and more care. While you may feel that you don't have time to think about yourself, it is important to remember your own health and well-being. By exercising, thinking about your health, and giving yourself time to relax, you will stay healthier and be able to spend more time with your loved one. Use this log to keep track of health care appointments, your exercise schedule, social engagements, etc.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Report

From Plan to Practice: Implementing the National Alzheimer's Plan in Your State

Author: National Alliance for Caregiving and the Alzheimer's Foundation of America

Date: July 21st, 2014

A new report from the National Alliance for Caregiving and the Alzheimer's Foundation of America focuses on the next steps in developing comprehensive plans to provide support and services to people with Alzheimer's disease and their family caregivers.  The Alliance is very proud to have been able to help support this important report.



Brochure

Living with Alzheimer's: A Personal Health Organizer

Date: June 1st, 2010

This 3-ring, hardcover binder includes the necesssary tools you need to sort through all of the information that comes your way.  It is designed to help the person who has just been diagnosed, but many of the worksheets can be used together with familiy members or by caregivers of those who are in later stages of the disease.

Since no one experiences Alzheimer's in the same way, your binder can be organized in a way that best fits your needs.

The binder includes a brochure and worksheets





Public Comments

Alzheimer's Disease PCORI Priorities Letter

Author: Cynthia Bens

Date: January 5th, 2016

The Alliance for Aging Research submitted a letter to the Patient-Centered Outcomes Research Institute (PCORI) suggesting possible research for the Institute to consider, aimed at improving outcomes for people with Alzheimer's disease. The Alliance encouraged the following topics:

  • Impact of non-pharmacologic interventions for Alzheimer’s disease on patient outcomes, caregiver burden and rates of institutionalization
  • Evaluation of screening methodologies, for relative ease/uptake and associated optimization across provider groups and settings of care;
  • Assessment of how Alzheimer’s disease diagnosis and treatment affects management of comorbidities;
  • Frequency of emergency room visits for Alzheimer’s disease patients and identification of
    best practices for potential mitigation;
  • Comparisons of currently available tools used to assess cognition to identify which is most
    effective for specific populations; and
  • Impact of knowing positive ApoE genotype status on patient, caregiver, and provider
    behaviors/outcomes as compared to ApoE negative status.
  •  



Public Comments

FY 2016 L-HHS Alzheimer's Disease Letter

Author: Misc. Organizations

Date: March 11th, 2015

The Alliance for Aging Research, USAgainstAlzheimer's, Cure Alzheimer's Foundation, BrightFocus Foundation, Leaders Engaged on Alzheimer's Disease, Alzheimer's Foundation of America, and American Academy of Neurology signed on to letters submitted to the House & Senate Labor, Health  and Human Services and Education and Related Agencies (L-HHS) Subcommittees, urging for a minimum of $2 billion for Alzheimer's disease and related dementias research supported by the National Institutes of Health (NIH).



Pocket Film

A Quick Look at Alzheimer's

Date: July 1st, 2014

These short, animated “pocket films” (~2 to 3 minutes each) are designed to be viewed anywhere at any time: a doctor’s office, a Congressional hallway, a family living room, and more. They were created to help reduce stigma, improve care, and help the public fight against Alzheimer’s disease.  They have captured millions of views in the U.S. and around the globe.

 

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