Publications

This page features brochures, newsletters, white papers, videos, and other resources devoted to the latest scholarship in aging research, age-related diseases and conditions, and living healthier, longer. Many publications are also available in hard copy

Browse Publications


Featured Publication



Survey

Colon Cancer: Caring for the Aging

Date: October 1st, 2005

Colon cancer is the third most commonly diagnosed cancer in the United States and will kill more than 50,000 people this year. A major risk factor for colon cancer is age, with more than 90% of cases occurring in people 50 years and older. Unfortunately, clinical evidence suggests that colon cancer patients 65 and older are not always getting the best disease management. However, a recent survey commissioned by the Alliance for Aging Research shows that caregivers play an important role in disease management and can have a major positive impact on disease outcomes.

The survey, conducted by Harris Interactive, interviewed oncologists on the importance of caregivers for elderly colon cancer patients. 77% of physicians interviewed agree that colon cancer patients 65 and older experience better disease outcomes when a caregiver is involved because of better communication. 81% also said that they depend on caregivers at least somewhat, and some a great deal, to act as an intermediary between them and the elderly patients. 100% feel the caregiver is part of a team involved in the patient's disease management. The physicians felt that the primary roles of the caregivers are to provide emotional support, participate in doctor's visits and in disease management decisions, and to provide transportation to and from doctor's appointments. Unfortunately, only around 3 out of 5 colon cancer patients 65 and older have the support of a caregiver.

Over 100 oncologists were interviewed, all of whom practice in the United States, treat at least 10 colorectal cancer patients per month, and have been practicing between 3 and 30 years. The survey included questions on how many patients have caregivers, who those caregivers are, their importance in disease management, their primary roles, and their participation in communication and treatment options.

 




Workshop Kit

Alzheimer's Disease: Helping Yourself Help a Loved One—Workshop Kit

Date: April 1st, 2008

This workshop kit is designed for community leaders in order to provide all of the tools necessary to conduct a workshop/seminar for family caregivers.  It contains:

  • A leaders' guide with tips and instructions on conducting a workshop, as well as the latest information on treatments and research
  • A caregiver workbook that helps caregivers develop a personalized action plan to take better care of their loved ones and themselves
  • A caregiver brochure that provides some of the many resources that will help caregivers form a network of support and take care of themselves
  • A DVD that shares the story of a family dealing with Alzheimer's




Brochure

Alzheimer's Disease: Helping Yourself Help a Loved One—Caregiver Brochure

Date: April 1st, 2008

This brochure provides some of the many resources that will help you form a network of support and take care of yourself, while taking care of your loved one.  The brochure is also availabe in Spanish.

You may also want to download this caregiver workbook that helps caregivers develop a personalized action plan to take better care of their loved ones and themselves.




Brochure

Alzheimer's Disease: Helping Yourself Help a Loved One—Leader's Guide

Date: April 1st, 2008

This leader's guide gives tips and instructions for community leaders on how to conduct a workshop/seminars for caregivers of loved ones with Alzheimer's disease.  It also shares the latest information on treatments and research.  The guide is also available in Spanish.

It is part of a larger workshop kit for community and health leaders.





Survey

Colon Cancer: Caring for the Aging--Key Survey Findings

Author: Harris Interactive

Date: November 1st, 2005

The Alliance commissioned a survey, conducted by Harris Interactive, that interviewed oncologists on the importance of caregivers for elderly colon cancer patients. 77% of physicians interviewed agreed that colon cancer patients 65 and older experience better disease outcomes when a caregiver is involved because of better communication. 81% also said that they depend on caregivers at least somewhat, and some a great deal, to act as an intermediary between them and the elderly patients. 100% fell the caregiver is part of a team involved in the patient's disease management.

The physicians felt that the primary roles of the caregivers are to provide emotional support, participate in doctor's visits and in disease management decisions, and to provide transportation to and from doctor's appointments. Unfortunately, only around three out of five colon cancer patients age 65 and older have the support of a caregiver.



Brochure

Alzheimer's Disease: Helping Yourself Help a Loved One--Caregiver Workbook

Date: April 1st, 2008

This workbook s an interactive resource that helps caregivers develop a personalized action plan to take better care of their loved ones and themselves. It includes worksheets on important issues such as making your home safe, preparing for a health care appointment, keeping a health journal, and dealing with financial planning.

The worksheets are useful tools for getting organized and keeping track of a lot of the information that comes with caring for someone with Alzheimer's disease. You can download and print out extra copies of these worksheets by clicking the links below:

You may also want to download this caregiver brochure which provides some of the many resources that will help you form a network of support and take care of yourself, while taking care of your loved one.



Fact Sheet

Alzheimer's Disease Workbook: Health Journal Worksheet

Date: April 1st, 2008

It's useful to keep a health journal so you can ensure that your loved one's health care team is able to provide the best care possible. By keeping track of day-to-day health information that only you may observe, you can provide valuable information to your loved one's health care team. A journal also makes it easy to record information about Alzheimer's disease and other conditions your loved one may have, so you can make the most of your time at appointments and be sure not to forget anything.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease: Medication List Worksheet

Date: April 1st, 2008

Your loved one may take many medications for Alzheimer's disease and other health conditions. Keeping track of them helps the health care team make sure the medications are working well together, and find possible drug interactions. You can use this medication list worksheet to keep all of the information about your loved one's medications in one place.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease Workbook: Health Care Appointment Worksheet

Date: April 1st, 2008

Taking your loved one to health care appointments may become difficult at times. If you prepare for appointments by writing down questions and scheduling the appointments at a good time for your loved one, you can make sure that the appointment goes as smoothly as possible. Use this worksheet to record information about the appointment so that it's all in one place.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease: Clinical Trial Worksheet

Date: April 1st, 2008

While there is no cure for Alzheimer's disease, there are drugs that may improve or stabilize symptoms. New drugs are also under development that offer hope for Alzheimer's patients, and clinical trials test whether these treatments are safe and effective. If you haven't already, you may want to consider enrolling your loved one in a clinical trial. This worksheet is a log that can help you keep track of clinical trials that you find.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease Workbook: Financial & Legal Checklist

Date: April 1st, 2008

By starting the financial and legal planning process now, you can make sure that your loved one is cared for as their disease progresses. It's important for you to start this process early, because Alzheimer's disease will gradually make it harder for your loved one to participate in planning. Use this checklist to get you started.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease Workbook: Home Safety Checklist

Date: April 1st, 2008

Alzheimer's disease progresses differently in everyone, but eventually it will affect your loved one's independence. The typical home environment may become unfamiliar and dangerous, but there are steps you can take to make the home less stressful. Use this checklist to make sure that your loved one's residence is safe.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Fact Sheet

Alzheimer's Disease Workbook: Personal Schedule Worksheet

Date: April 1st, 2008

As Alzheimer's disease progresses, your loved one will need more and more care. While you may feel that you don't have time to think about yourself, it is important to remember your own health and well-being. By exercising, thinking about your health, and giving yourself time to relax, you will stay healthier and be able to spend more time with your loved one. Use this log to keep track of health care appointments, your exercise schedule, social engagements, etc.

To access other helpful worksheets, download Alzheimer's Disease: Helping Yourself Help a Loved One--Workbook.



Brochure

Living with Alzheimer's: A Personal Health Organizer

Date: June 1st, 2010

This 3-ring, hardcover binder includes the necesssary tools you need to sort through all of the information that comes your way.  It is designed to help the person who has just been diagnosed, but many of the worksheets can be used together with familiy members or by caregivers of those who are in later stages of the disease.

Since no one experiences Alzheimer's in the same way, your binder can be organized in a way that best fits your needs.

The binder includes a brochure and worksheets



Public Comments

Letter to Ayotte, Bennet, Black, and Grisham on Assisting Caregivers Today (ACT) Caucus

Author: Various

Date: April 20th, 2015

The Alliance for Aging Research joined other organizations in this letter commending Sen. Kelly Ayotte,  Rep. Diane Black, Rep. Michael Bennet, and Rep. Michelle Lujan Grisham for  their leadership in establishing and co-chairing the bipartisan, bicameral Assisting Caregivers Today (ACT) Caucus.

Living Longer & Loving It

Sign up for our electronic newsletter Living Longer & Loving It