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Public Comments

Author: Cynthia Bens

Date: 2016

The Alliance for Aging Research submitted a letter to the Patient-Centered Outcomes Research Institute (PCORI) suggesting possible research for the Institute to consider, aimed at improving outcomes for people with Alzheimer's disease. The Alliance encouraged the following topics:

  • Impact of non-pharmacologic interventions for Alzheimer’s disease on patient outcomes, caregiver burden and rates of institutionalization
  • Evaluation of screening methodologies, for relative ease/uptake and associated optimization across provider groups and settings of care;
  • Assessment of how Alzheimer’s disease diagnosis and treatment affects management of comorbidities;
  • Frequency of emergency room visits for Alzheimer’s disease patients and identification of
    best practices for potential mitigation;
  • Comparisons of currently available tools used to assess cognition to identify which is most
    effective for specific populations; and
  • Impact of knowing positive ApoE genotype status on patient, caregiver, and provider
    behaviors/outcomes as compared to ApoE negative status.



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