Category: Alzheimer’s Disease (Page 6)

February 10, 2015

ACT-AD 21st Century Cures Letter

Accelerate Cure/Treatments for Alzheimer’s Disease (ACT-AD) submitted a letter the House Committee on Energy and Commerce to provide feedback on the 21st Century Cures discussion draft released on January 27, 2015.    
December 15, 2014

Alliance Submits Suggestions for NIA’s Aging Well in the 21st Century

The National Institute on Aging recently put out a call for comments and ideas for a draft of its strategic directions document, Aging Well in the 21st Century.
September 23, 2014

World Alzheimer’s Month: Improving Prevention and Treatment

This is a guest post from the Patient-Centered Outcomes Research Institute on World Alzheimer's Month. 
July 21, 2014

From Plan to Practice: Implementing the National Alzheimer’s Plan in Your State

A new report from the National Alliance for Caregiving and the Alzheimer's Foundation of America focuses on the next steps in developing comprehensive plans to provide support and services to people with Alzheimer's disease and their family caregivers.  The Alliance is very proud to have been able to help support this important report.
July 1, 2014

A Quick Look at Alzheimer’s (Film 1): What is Alzheimer’s Disease?

These short, animated “pocket films” (~2 to 3 minutes each) are designed to be viewed anywhere at any time: a doctor’s office, a Congressional hallway, a family living room, and more. They were created to help reduce stigma, improve care, and help the public fight against Alzheimer’s disease.  They have captured millions of views in the U.S. and around the globe.  
July 1, 2014

Update: Talaya Waller Birthday Update

We want to thank Talaya Waller for her commitment to Alzheimer's research and for including us in her special tribute to her grandmother.
June 4, 2014

A Birthday Party to Celebrate Aging–and the Research Behind It

Talaya Waller turns 29 this month, and she’s throwing a big party in Washington, D.C., on June 21.
April 28, 2014

Alliance Hosts Alzheimer’s Film Screening at French Embassy

On Thursday evening, April 24, the French Embassy in Washington, D.C., played host to the big screen debut of A Quick Look at Alzheimer's.
May 20, 2013

Rules of Engagement in Drug Development

The first rule of patient engagement is that patients come first! Even though patient engagement currently occurs across a wide range of venues through a wide range of mechanisms, this rule may not always be considered. Appropriate types of engagement need to be implemented at critical times in the drug development process in order to generate meaningful, useful information from the patient perspective. The purpose of this issue panel is to present the patient view on how to get patient engagement right. The goal of this panel is to identify principles for meaningful patient engagement during medical product development.
May 13, 2013

Tweets Do Tell: Alzhemier’s Not a High Priority for Research Funding

An article by Cynthia Bens, Alliance vice president of public policy