Letter to the House and Senate Appropriations Subcommittees on Agriculture, Rural Development, Food and Drug Administration, and Related Agencies urging the Subcommittee to prioritize the U.S. Food and Drug Administration's (FDA) during Fiscal Year (FY) 2017 by increasing the agency's appropriated funding by $120 million.
The Alliance for Aging Research submitted a letter to the Patient-Centered Outcomes Research Institute (PCORI) suggesting possible research for the Institute to consider, aimed at improving outcomes for people with Alzheimer's disease. The Alliance encouraged the following topics:
Impact of non-pharmacologic interventions for Alzheimer’s disease on patient outcomes, caregiver burden and rates of institutionalization
Evaluation of screening methodologies, for relative ease/uptake and associated optimization across provider groups and settings of care;
Assessment of how Alzheimer’s disease diagnosis and treatment affects management of comorbidities;
Frequency of emergency room visits for Alzheimer’s disease patients and identification of
best practices for potential mitigation;
Comparisons of currently available tools used to assess cognition to identify which is most
effective for specific populations; and
Impact of knowing positive ApoE genotype status on patient, caregiver, and provider
behaviors/outcomes as compared to ApoE negative status.
The Alliance for Aging Research, USAgainstAlzheimer's, Cure Alzheimer's Foundation, BrightFocus Foundation, Leaders Engaged on Alzheimer's Disease, Alzheimer's Foundation of America, and American Academy of Neurology signed on to letters submitted to the House & Senate Labor, Health and Human Services and Education and Related Agencies (L-HHS) Subcommittees, urging for a minimum of $2 billion for Alzheimer's disease and related dementias research supported by the National Institutes of Health (NIH).
Accelerate Cure/Treatments for Alzheimer’s Disease (ACT-AD) submitted a letter the House Committee on Energy and Commerce to provide feedback on the 21st Century Cures discussion draft released on January 27, 2015.
A new report from the National Alliance for Caregiving and the Alzheimer's Foundation of America focuses on the next steps in developing comprehensive plans to provide support and services to people with Alzheimer's disease and their family caregivers. The Alliance is very proud to have been able to help support this important report.
On June 28, 2012 the Alliance for Aging Research and its project partner the U.S. Administration on Aging (AoA), convened Translating Innovation to Impact, a one-day working meeting to review the state of research into evidence-based interventions to help people with Alzheimer’s remain healthy and independent in the community while reducing the stress on their caregivers.
This document provides the agenda and pre-reads for that important meeting.
The Alzheimer’s Disease (AD) Biomarker Expert Working Group just published a new paper in Neurobiology of Aging. They recommend that certain AD biomarkers be used for clinical assessments, enrolling study participants, and as an outcome in AD clinical trials.
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