Documents connected to "ACT-AD"

August 23, 2016

Alliance Comments on PDUFA VI Commitment Letter

The Alliance provided comments in response to the U.S. Food and Drug Administration's PDUFA VI Commitment Letter.
March 17, 2016

FY17 ACT-AD FDA Appropriations Request Letter

Letter to the House and Senate Appropriations Subcommittees on Agriculture, Rural Development, Food and Drug Administration, and Related Agencies urging the Subcommittee to prioritize the U.S. Food and Drug Administration's (FDA) during Fiscal Year (FY) 2017 by increasing the agency's appropriated funding by $120 million. 
January 5, 2016

Alzheimer’s Disease PCORI Priorities Letter

The Alliance for Aging Research submitted a letter to the Patient-Centered Outcomes Research Institute (PCORI) suggesting possible research for the Institute to consider, aimed at improving outcomes for people with Alzheimer's disease. The Alliance encouraged the following topics: Impact of non-pharmacologic interventions for Alzheimer’s disease on patient outcomes, caregiver burden and rates of institutionalization Evaluation of screening methodologies, for relative ease/uptake and associated optimization across provider groups and settings of care; Assessment of how Alzheimer’s disease diagnosis and treatment affects management of comorbidities; Frequency of emergency room visits for Alzheimer’s disease patients and identification of best practices for potential mitigation; Comparisons of currently available tools used to assess cognition to identify which is most effective for specific populations; and Impact of knowing positive ApoE genotype status on patient, caregiver, and provider behaviors/outcomes as compared to ApoE negative status.  
May 15, 2015

ACT-AD Letter to DeGette and Upton Re: 21st Century Cures

This letter is from the ACT-AD Coalition to Rep. Fred Upton and Rep. Diana DeGette applauding their work around the 21st Century Cures bill.
March 11, 2015

FY 2016 L-HHS Alzheimer’s Disease Letter

The Alliance for Aging Research, USAgainstAlzheimer's, Cure Alzheimer's Foundation, BrightFocus Foundation, Leaders Engaged on Alzheimer's Disease, Alzheimer's Foundation of America, and American Academy of Neurology signed on to letters submitted to the House & Senate Labor, Health  and Human Services and Education and Related Agencies (L-HHS) Subcommittees, urging for a minimum of $2 billion for Alzheimer's disease and related dementias research supported by the National Institutes of Health (NIH).
February 10, 2015

ACT-AD 21st Century Cures Letter

Accelerate Cure/Treatments for Alzheimer’s Disease (ACT-AD) submitted a letter the House Committee on Energy and Commerce to provide feedback on the 21st Century Cures discussion draft released on January 27, 2015.    
July 21, 2014

From Plan to Practice: Implementing the National Alzheimer’s Plan in Your State

A new report from the National Alliance for Caregiving and the Alzheimer's Foundation of America focuses on the next steps in developing comprehensive plans to provide support and services to people with Alzheimer's disease and their family caregivers.  The Alliance is very proud to have been able to help support this important report.
September 12, 2012

Translating Innovation to Impact: Evidence-based interventions to support people with Alzheimer’s disease and their caregivers at home and in the community

This white paper presents the findings and recommendations from a review of the state of the art non-pharmacological treatments and…
June 1, 2012

Translating Innovation to Impact: Evidence-based interventions to support people with Alzheimer’s disease and their caregivers at home and in the community

This white paper presents the findings and recommendations from a review of the state of the art non-pharmacological treatments and…
June 1, 2012

Translating Innovation to Impact: Pre-reads

On June 28, 2012 the Alliance for Aging Research and its project partner the U.S. Administration on Aging (AoA), convened Translating Innovation to Impact, a one-day working meeting to review the state of research into evidence-based interventions to help people with Alzheimer’s remain healthy and independent in the community while reducing the stress on their caregivers. This document provides the agenda and pre-reads for that important meeting.
January 26, 2012

The Caregivers Voice–Interview with Dan Perry

The Alzheimer’s Disease (AD) Biomarker Expert Working Group just published a new paper in Neurobiology of Aging. They recommend that certain AD biomarkers be used for clinical assessments, enrolling study participants, and as an outcome in AD clinical trials.