Return to top of page

Alliance Leads More Than 50 Organizations Urging President Biden to Reevaluate Decision on Alzheimer’s Diagnostics

Published December 13, 2022

Alzheimer's symbolism with caring hands around.

The Alliance for Aging Research and 52 additional organizations shared a letter with President Biden today urging him to direct the Secretary of the U.S. Department of Health and Human Services to reopen the Aβ PET national coverage determination (NCD) for amyloid beta (Aβ) positron emission tomography (PET) for a full reconsideration.

In 2013, the Centers for Medicare and Medicaid Services (CMS) issued an NCD that limited Medicare coverage for Aβ PET to a single scan per lifetime that occurred within the context of a clinical trial. Since, extensive data on the therapeutic value of Aβ PET has been accumulated.

The organizations also asked the White House to revisit the draft decision under development to ensure that CMS’s proposal is inclusive of the promising new data on disease-modifying therapies for Alzheimer’s disease released during the Clinical Trials on Alzheimer’s Disease conference that occurred November 29 through December 2.

The organizations asked President Biden to stand together with Alzheimer’s patients and families to ensure Medicare beneficiaries can receive needed care.

The letter can be read here.

Here is a list of the organizations that have signed on:

  • ADvancing States
  • Alliance for Aging Research
  • Alliance for Patient Access
  • Alzheimer’s Disease Resource Center, Inc.
  • Alzheimer’s Los Angeles
  • Alzheimer’s New Jersey
  • Alzheimer’s San Diego
  • Alzheimer’s Drug Discovery Foundation
  • Alzheimer’s Orange County
  • American Society of Consultant Pharmacists
  • Argentum
  • Black, Gifted & Whole Inc. Brain Health Center for African Americans
  • BrightFocus Foundation
  • Caregiver Action Network
  • CaringKind
  • Chronic Care Policy Alliance
  • Cleveland Clinic Lou Ruvo Center for Brain Health, Nevada
  • Family Caregiver Alliance
  • From The Bottom Up Foundation
  • Gerontological Advanced Practice Nurses Association (GAPNA)
  • Global Alzheimer’s Platform Foundation, Inc. Global CEO Initiative on Alzheimer’s Disease
  • Global Coalition on Aging Alliance for Health Innovation
  • HealthyWomen
  • Incubate
  • Infusion Providers Alliance
  • International Association for Indigenous Aging
  • LEAD Coalition (Leaders Engaged on Alzheimer’s Disease)
  • Livpact
  • Lupus and Allied Diseases Association, Inc.
  • Memory Advocate Peers
  • National Alliance for Caregiving
  • National Certification Council for Activity Professionals
  • National Consumers League
  • National Hispanic Council on Aging
  • National Hispanic Medical Association
  • National Minority Quality Forum
  • National Task Group on Intellectual Disabilities and Dementia Practices
  • Nevada Chronic Care Collaborative
  • Noah Homes
  • Ohio Council For Cognitive Health
  • Partnership to Fight Chronic Disease
  • Patients Rising Now
  • Planetree International
  • RetireSafe
  • Second Wind Dreams
  • The Balm In Gilead, Inc
  • The Gerontological Society of America
  • University of South Florida Byrd Alzheimer’s Institute
  • UsAgainstAlzheimer’s
  • Voices of Alzheimer’s
  • Volunteers of America

News & Updates