The Alliance for Aging Research submitted a letter to the Patient-Centered Outcomes Research Institute (PCORI) suggesting possible research for the Institute to consider, aimed at improving outcomes for people with Alzheimer's disease. The Alliance encouraged the following topics:
Impact of non-pharmacologic interventions for Alzheimer’s disease on patient outcomes, caregiver burden and rates of institutionalization
Evaluation of screening methodologies, for relative ease/uptake and associated optimization across provider groups and settings of care;
Assessment of how Alzheimer’s disease diagnosis and treatment affects management of comorbidities;
Frequency of emergency room visits for Alzheimer’s disease patients and identification of
best practices for potential mitigation;
Comparisons of currently available tools used to assess cognition to identify which is most
effective for specific populations; and
Impact of knowing positive ApoE genotype status on patient, caregiver, and provider
behaviors/outcomes as compared to ApoE negative status.
This is a statement presented by Alliance Vice President of Public Policy Cynthia Bens at the December 18, 2015, stakeholder meeting regarding reauthorization of the Medical Device User Fee Act (MDUFA).
This is a statement presented by Alliance Vice President of Public Policy Cynthia Bens at the December 17, 2015, stakeholder meeting regarding reauthorization of the Prescription Drug User Fee Act (PDUFA).
The Alliance and other organizations signed on with this December 10, 2015, letter produced by the U.S. Pain Foundation focused on Draft Legislation HR 4063, Promoting Responsible Opioid Management and Incorporating Medical Expertise Act.
The Alliance for Aging Research led AFib Optimal Treatment Task Force submitted a letter to the CDC commenting on the agency's Healthy People 2020 goals. The letter recommended:
The CDC should add Afib as a modifiable risk factor for stroke
The CDC address the under anticoagulation of older AFib patients as an emerging issue in heart disease and stroke
The Alliance for Aging Research signed on to a U.S. Stakeholder Forum on Antimicrobial Resistance (S-FAR) letter in support of the antibiotic stewardship provisions in the Centers for Medicare and Medicaid Services (CMS) proposed rule revising the requirements long term care facilities (LTCFs) must meet to participate in Medicare and Medicaid programs.
The Alliance for Aging Research signed on to a letter asking the Senate Finance Committee to create a transition mechanism by which the Secretary of Health and Human Services may lift originating site restrictions and allow payment for remote monitoring of Medicare beneficiaries suffering from chronic diseases.
Sign up for our email newsletter, Living Longer & Loving It, for the latest information on scientific research on aging and health.