Terms & Conditions
The Site Does Not Provide Medical Advice
The contents of the Alliance Site such as text, graphics, images, and other material (“the Content”) are for informational purposes only.
The Content is designed to support, not replace, the information provided by healthcare professionals and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your health care professional with any questions you may have regarding a medical condition.
The Alliance does not recommend or endorse any specific tests, health care professionals, treatments, products, procedures, opinions, or other information that may be mentioned on the Site. Reliance on any information provided by the Alliance, its employees, or others appearing on the Site is done solely at your own risk.
Although our Content is often reviewed by medical professionals, the Alliance does not guarantee the accuracy, adequacy, or completeness of any information and is not responsible for any errors or omissions or for the results obtained from the use of such information.
Intellectual Property and Use of Content
The Alliance authorizes you to view, download, or print copies of the materials on the Alliance Site solely for personal and/or non-profit, non-commercial educational use. You may not make alterations to the Content; and you shall not remove or alter any logos, acknowledgements, or copyright notices located in the materials. No reproduction of any part of this Site may be sold or further distributed nor shall it be modified or incorporated in any other work, publication or website, whether in hard copy or electronic format, including posting to any other website. No other license or right is granted. Republication or redistribution of Content, including framing or similar means, is expressly prohibited without the prior written consent of the Alliance.
This Site, all functionality and features, and Content are the intellectual property of the Alliance and/or its licensors, and are protected by U.S. copyright and trademark laws. Title to the Content remains with the Alliance or its licensors. Any use of the Content not expressly permitted by these Terms and Conditions is a breach of these Terms and Conditions and may violate copyright and trademark laws.
If you violate any of these Terms and Conditions, your permission to use the Content automatically terminates.
Information the Alliance Collects and How it is Used
We may ask you to provide us with Personal Information if you would like to participate in some activities available on, or benefit from services offered on, this website, such as signing up to receive newsletters. The Alliance considers “Personal Information” to include information that alone or when in combination with other information may be used to readily identify, contact, or locate you, such as: name, address, email address, or phone number. The Alliance does not consider Personal Information to include information that has been anonymized so that it does not allow a third-party to easily identify a specific individual.
If you choose to make a donation or other activity that requires payment, we may also ask for information required for billing and shipment, such as your credit card number, card verification security code, billing address, phone number, and email address.
We may collect Personal Information through your communications with our donor relations teams and payment affiliates.
Notice of Copyright Infringement
- Identification of the copyrighted work you believe to have been infringed or, if the claim involves multiple works on this Site, a representative list of such works;
- Identification of the Content you believe to be infringing in a sufficiently precise manner to allow us to locate that Content;
- Information by which we can contact you (including your name, postal address, telephone number and e-mail address);
- A statement that you have a good faith belief that the use of the content is not authorized by the copyright owner, its agent or the law (e.g. is not a “fair use”);
- A statement that the information in the written notice is accurate; and
- A statement, under penalty of perjury, that you are authorized to act on behalf of the copyright owner.
Our designated Copyright Agent to receive DMCA Notices is:
Director of Communications
If you knowingly materially misrepresent that any Content on the Site is infringing your copyright, you may be held liable for damages (including costs and attorneys’ fees) under Section 512(f) of the DMCA.
We reserve the right to terminate the accounts of users who we deem to be repeat copyright infringers.
Links to Other Sites and Social Media
The Alliance may provide links to third-party web sites. The Alliance does not endorse the content on any third-party websites and is not responsible for the content of linked third-party sites nor does the Alliance make any representations regarding their content or accuracy. Your use of third-party websites is at your own risk and subject to the terms and conditions of use for such sites.
You may link or hyperlink any publicly available page of this Site to a website that is owned by you, provided you do so in a way that is legal and does not, in our sole opinion, damage our reputation. The link must not suggest any form of association, approval or endorsement on our part without our express written consent.
This Site may provide certain social media features that enable you to link to certain Content on this Site; send messages with our Content, or links to our Content on this Site; or display excerpts of our Content on your own or social media websites. You may use these features solely as they are provided by us and solely with respect to the Content with which these features are displayed and otherwise in accordance with any additional terms and conditions we provide with respect to such features.
The Alliance does not knowing or intentionally collect personal information from children under the age of 18. The content of our website is directed at adults, and therefore this site is intended for use only by adults over the age of 18. If you are under the age of 18, please consult a parent or guardian before using this Site.
Anonymous Information and Tracking Technologies
When you use the Site, we automatically collect certain information that does not identify you personally, such as where you browse within the Site, traffic and location data and information about the computer and Internet connection. This information helps us to administer the Site and provide a better user experience. We do not collect personally identifying information automatically, but we may connect this information to personal information about you that you provide to us or we collect from other resources.
The Site and emails we send to you may contain transparent GIF files (also known as “web beacons,” “action tags,” or “pixel tags”) to help manage online advertising. These GIF files are used by us and our business partners to recognize when a visitor views a web page or opens an email. This information enables us to learn which emails and advertisements bring users to our website.
If you have provided us with personally identifiable information, e.g., through a registration or a request for certain materials, we may associate this personally identifiable information with information gathered through these tracking technologies. This allows us to offer a better user experience with more personalized content.
Do Not Track Signals
Some web browsers may transmit “do not track” signals to websites with which the browser communicates. Our Site does not currently respond to these “do not track” signals.
Disclaimer of Warranty and Limitation of Liability
You understand that we don’t guarantee that material available for downloading from the Internet or the Site will be free of viruses or other destructive code. You are responsible for implementing sufficient procedures and checkpoints to satisfy your particular requirements for anti-virus protection and accuracy of data, and for maintaining a means external to our site for any reconstruction of any lost data.
WE ARE NOT LIABLE FOR ANY LOSS OR DAMAGE CAUSED BY A DISTRIBUTED DENIAL-OF-SERVICE ATTACK, VIRUSES OR OTHER TECHNOLOGICALLY HARMFUL MATERIAL THAT MAY INFECT YOUR COMPUTER EQUIPMENT, COMPUTER PROGRAMS, DATA OR OTHER PROPRIETARY MATERIAL DUE TO YOUR USE OF THE SITE OR ANY SERVICES OR ITEMS OBTAINED THROUGH THE WEBSITE OR TO YOUR DOWNLOADING OF ANY MATERIAL POSTED ON IT, OR ON ANY WEBSITE LINKED TO IT.
YOUR USE OF THE SITE, ITS CONTENT AND ANY SERVICES OR ITEMS OBTAINED THROUGH THE WEBSITE IS AT YOUR OWN RISK. THE WEBSITE, ITS CONTENT AND ANY SERVICES OR ITEMS OBTAINED THROUGH THE WEBSITE ARE PROVIDED ON AN “AS IS” AND “AS AVAILABLE” BASIS, WITHOUT ANY WARRANTIES OF ANY KIND, EITHER EXPRESS OR IMPLIED. NEITHER THE COMPANY NOR ANY PERSON ASSOCIATED WITH THE COMPANY MAKES ANY WARRANTY OR REPRESENTATION WITH RESPECT TO THE COMPLETENESS, SECURITY, RELIABILITY, QUALITY, ACCURACY OR AVAILABILITY OF THE SITE. WITHOUT LIMITING THE FOREGOING, NEITHER THE ALLIANCE NOR ANYONE ASSOCIATED WITH THE ALLIANCE REPRESENTS OR WARRANTS THAT THE SITE, ITS CONTENT OR ANY SERVICES OR ITEMS OBTAINED THROUGH THE SITE WILL BE ACCURATE, RELIABLE, ERROR-FREE OR UNINTERRUPTED, THAT DEFECTS WILL BE CORRECTED, THAT OUR SITE OR THE SERVER THAT MAKES IT AVAILABLE ARE FREE OF VIRUSES OR OTHER HARMFUL COMPONENTS OR THAT THE WEBSITE OR ANY SERVICES OR ITEMS OBTAINED THROUGH THE WEBSITE WILL OTHERWISE MEET YOUR NEEDS OR EXPECTATIONS.
WE DISCLAIM ALL WARRANTIES OF ANY KIND, WHETHER EXPRESS OR IMPLIED, STATUTORY OR OTHERWISE, INCLUDING BUT NOT LIMITED TO ANY WARRANTIES OF MERCHANTABILITY, NON-INFRINGEMENT AND FITNESS FOR PARTICULAR PURPOSE. THIS DOES NOT AFFECT ANY WARRANTIES WHICH CANNOT BE EXCLUDED OR LIMITED UNDER APPLICABLE LAW.
IN NO EVENT WILL THE ALLIANCE, ITS AFFILIATES OR THEIR LICENSORS, SERVICE PROVIDERS, EMPLOYEES, AGENTS, OFFICERS OR DIRECTORS BE LIABLE FOR DAMAGES OF ANY KIND, UNDER ANY LEGAL THEORY, ARISING OUT OF OR IN CONNECTION WITH YOUR USE, OR INABILITY TO USE, THE SITE, ANY WEBSITES LINKED TO IT, ANY CONTENT ON THE SITE OR SUCH OTHER WEBSITES OR ANY SERVICES OR ITEMS OBTAINED THROUGH THE SITE OR SUCH OTHER WEBSITES, INCLUDING ANY DIRECT, INDIRECT, SPECIAL, INCIDENTAL, CONSEQUENTIAL OR PUNITIVE DAMAGES, INCLUDING BUT NOT LIMITED TO, PERSONAL INJURY, PAIN AND SUFFERING, EMOTIONAL DISTRESS, LOSS OF REVENUE, LOSS OF PROFITS, LOSS OF BUSINESS OR ANTICIPATED SAVINGS, LOSS OF USE, LOSS OF GOODWILL, LOSS OF DATA, AND WHETHER CAUSED BY TORT (INCLUDING NEGLIGENCE), BREACH OF CONTRACT OR OTHERWISE, EVEN IF FORESEEABLE. THIS DOES NOT AFFECT ANY LIABILITY WHICH CANNOT BE EXCLUDED OR LIMITED UNDER APPLICABLE LAW.
You expressly agree that exclusive jurisdiction for any dispute with the Alliance in any way related to your use of the Alliance site, resides in the District of Columbia, USA courts. You further agree and expressly consent to the exercise of personal jurisdiction in the courts of the District of Columbia, USA in connection with any such dispute including any claim involving the Alliance or its employees, contractors, and officers.
These Terms and Conditions are governed by the internal substantive laws of the District of Columbia, USA without respect to its conflict of laws principles.
Territory of Use
International Users and Donors
This website is hosted in the United States. If you are visiting from the European Union or other regions with laws governing data collection and use that may differ from U.S. law please note that when you register with our website or donate you are transferring your personal data to the United States, a country which does not have the same data protection laws as the EU, and by providing your personal data you consent to:
The transfer of your personal data to the United States as indicated above.
If any provision of these Terms and Conditions is found to be invalid by any court having competent jurisdiction, the invalidity of such provision shall not affect the validity of the remaining provisions of these Terms and Conditions, which shall remain in full force and effect. No waiver of these Terms and Conditions shall be deemed a further or continuing waiver of such term or condition or any other term or condition.