Talk NERDY to Me
Research shows that involving older adult patients in decision-making about their healthcare leads to better patient outcomes and satisfaction. Older adult patient and family caregiver engagement in research is more critical than ever to the Alliance’s overall mission.
With support from the Patient-Centered Outcomes Research Institute (PCORI), the Alliance created the “Talk NERDY (Nurturing Engagement in Research and Development with You) to Me” network (formerly the Senior Patient and Family Caregiver Network, or SP&FCN) to train a new group of older adult patients and family caregivers each year on:
- Patient-centered outcomes research (PCOR) and the clinical trials process;
- How to develop research questions that are important to older patients and their family caregivers; and,
- How to find PCOR opportunities and encourage others to do the same.
We then help get them involved in public and private advisory roles on clinical trial review committees, IRBs, and other research, policy, and health education-focused opportunities.
Our disease areas of focus include age-related macular degeneration, Alzheimer’s disease, atrial fibrillation, chronic pain, heart valve disease, and sarcopenia. These disease areas of focus may change or expand in future years to additional conditions that align with the Alliance for Aging Research’s mission.
- Learn more about the 2017 SP&FCN Training
- Learn more about the 2018 SP&FCN Training
- Learn more about the 2019 Talk NERDY to Me Training
At the core of the network is the Talk NERDY to Me Advisory Council comprised of patients, researchers, payers, and industry representatives who have been instrumental in shaping the training and engaging directly with network participants.
If you are interested in learning more about Talk NERDY to Me, or if you would like to know more about becoming a sponsor or joining the Talk NERDY to Me Advisory Council, email [email protected].
This program is made possible with generous support from:
The Alliance thanks the corporate supporters of its
Talk NERDY to Me Advisory Council:
Still curious? Hear from past advocates about why they found the Talk NERDY to Me training so valuable, or check out these spotlight features on former Talk NERDY to Me trainees:
- Patty Peterson: Patty Peterson reflects on her patient advocacy journey
- Marlene Klein: Patient-advocate reflects on the importance of AMD Awareness Month
- Debbe McCall: Becoming your own patient-advocate
- Jim and Geri Taylor: Research advocacy training empowers patients and caregivers
- Terrie Montgomery: How a woman with Alzheimer’s disease lives every second