Talk NERDY to Me

The Talk NERDY (Nurturing Engagement in Research and Development with You) to Me program empowers older adults, their family caregivers, clinicians, and health researchers to learn about patient-centered outcomes research (PCOR) and how we can all work together to develop – and implement – research that answers the questions that matter most to patients. The program’s focus is on five health conditions of particular interest to older adults: 1) Alzheimer’s disease, 2) atrial fibrillation, 3) chronic pain and/or disability, 4) heart valve disease and 5) macular degeneration in adults 65 years and older.

The Alliance for Aging Research, with support from the Patient-Centered Outcomes Research Institute (PCORI), trains a new group of participants each year. Since 2017, the Talk NERDY to Me program has trained 96 patients and family caregivers on PCOR and the clinical trials process, how to develop research questions that are important to older patients and their family caregivers, and how to find PCOR opportunities and encourage others to do the same. Learn more about previous Talk NERDY to Me trainings:

Talk NERDY graduates go on to serve in public and private advisory roles on clinical trial review committees, institutional review boards, and other research, policy, and health education-focused opportunities. In fact, 86% of Talk NERDY to Me alumni have participated in at least 1 PCOR activity since graduation, and almost 40% of alumni have participated in an average of four different activities. Learn more about Talk NERDY to Me by hearing from past advocates.

Our program brings together three important communities/perspectives:

  1. Patients with lived experience of these health conditions;
  2. Caretakers with lived experience of caring for a loved one with these health conditions; and
  3. Clinicians and researchers interested in developing new patient-centered outcomes research or integrating patient engagement within existing research programs.

All of the participants bring expertise to the table. Clinicians and researchers help patients and caregivers better understand the research process, and patients and caretakers help researchers better understand what research questions matter most. Through the Talk NERDY to Me program, all participants work together to learn how research can be better designed to meet patient and family caregiver needs.

At the core of the network is the Talk NERDY to Me Advisory Council which is a network of patients, researchers, payers, and industry representatives that promotes older people’s engagement in shaping research.

If you are interested in learning more about Talk NERDY to Me, participating in the program, or joining the Talk NERDY to Me Advisory Council, email Ashley Leonard, Development Project Coordinator, at [email protected].

 

This program is made possible with generous support from:

 

The Alliance thanks the corporate supporters of its
Talk NERDY to Me Advisory Council:

           

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