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Talk NERDY to Me

Published July 30, 2020

Research shows that involving older adult patients in decision-making about their healthcare leads to better patient outcomes and satisfaction. Older adult patient and family caregiver engagement in research is more critical than ever to the Alliance’s overall mission.

With support from the Patient-Centered Outcomes Research Institute (PCORI), the Alliance created the “Talk NERDY (Nurturing Engagement in Research and Development with You) to Me” program (formerly the Senior Patient and Family Caregiver Network, or SP&FCN) to train a new group of older adult patients and family caregivers each year on:

-Patient-centered outcomes research (PCOR) and the clinical trials process;

-How to develop research questions that are important to older patients and their family caregivers; and,

-How to find PCOR opportunities and encourage others to do the same.

We then help get them involved in public and private advisory roles on clinical trial review committees, IRBs, and other research, policy, and health education-focused opportunities. Learn more at https://www.agingresearch.org/nerdy/.