November 16th 2020 – On Friday, November 13, the Alliance for Aging Research submitted feedback to the Patient-Centered Outcomes Research Institute (PCORI) on their proposed principles on applying the full range of outcomes data in funded research. These principles will guide the types of research that PCORI will support over the next decade. PCORI proposes to expand the types of burden included in analyses, including for patients, caregivers, clinicians, and payers.

Key points in the comment letter include:

• Support for the PCORI’s principles and mission to advance clinical effectiveness research.
• Advising PCORI to include a wide range of patient and caregivers impacts to accurately ascertain the impacts important in healthcare outcomes and decision-making
• Encouraging research exploring the relative importance of meaningful outcomes to stakeholders in order to inform care redesign and policy that maximizes societal benefits
• Recommending that PCORI make the identification of non quality-adjusted life-year (QALY) economic approaches that emphasizes patient-centered outcomes and preferences a core initiative.

Read the full letter here.

About the Alliance for Aging Research
The Alliance for Aging Research is the leading nonprofit organization dedicated to accelerating the pace of scientific discoveries and their application to vastly improve the universal human experience of aging and health. The Alliance believes advances in research help people live longer, happier, more productive lives and reduce healthcare costs over the long term. For more than 30 years, the Alliance has guided efforts to substantially increase funding and focus for aging at the National Institutes of Health and Food and Drug Administration; built influential coalitions to guide groundbreaking regulatory improvements for age-related diseases; and created award-winning, high-impact educational materials to improve the health and well-being of older adults and their family caregivers. For more information, visit www.agingresearch.org

Media Contact:
Janelle Germanos
Communications Manager
[email protected]
(202) 688-1209

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Advocacy for Patient-Centered Outcomes Research Institute

The Alliance for Aging Research supports the work of Patient-Centered Outcomes Research Institute (PCORI).

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