2020 Call for Advocates
Talk NERDY to Me is seeking advocates to participate in the 2020 research-advocacy training program designed to empower senior patients and their family caregivers to engage in patient-centered outcomes research (PCOR).
The Talk NERDY to Me network empowers older adults and their caregivers to collaborate with physicians and researchers on patient-centered outcomes research (PCOR) related to (1) age-related macular degeneration, (2) Alzheimer’s disease, (3) atrial fibrillation, (4) chronic pain, (5) heart valve disease, and (6) sarcopenia. To achieve this goal, we will train about 35 patients/caregivers through a six-week online workshop and mentoring program.
Beginning in mid-October, participants will meet for 90 minutes to learn from researchers in the field and each other. Participants will also complete weekly assignments and have other opportunities to collaborate online. The workshop will culminate in individualized action plans for each participant.
By completing the course, participants will learn the following:
- The purpose of—and best practices in—Patient-Centered Outcomes Research;
- How to develop research questions meaningful to older adults;
- Key scientific tools and concepts to better understand health research; and
- How to put this training to work.
We are looking for advocates who are:
- Engaged in advocacy in one of the priority health conditions;
- Excited to learn about medical research. There is NO prior knowledge or expertise required;
- Able to participate in six 90-minute online sessions. You do NOT need to be tech savvy in any way; we will walk you through every step of the “online” process; and
- Complete 3-5 hours of homework prior to each session. (No grading – we promise!)
Participants successfully completing the workshop will receive a stipend of $400 and a Certificate of Completion for participating in the training.
Course Sessions Schedule:
Session One: What is Patient-Centered Outcomes Research?
Wednesday, October 14, 2020
Session Two: How does medical research work?
Wednesday, October 21, 2020
Session Three: How do I analyze medical research?
Wednesday, October 28, 2020
Session Four: How do I find and evaluate clinical trials?
Wednesday, November 4, 2020
Session Five: What does PCOR advocacy actually look like?
Wednesday, November 11, 2020
Session Six: What’s my plan for getting involved and learning more?
Thursday, November 19, 2020
For more information about this opportunity, the Talk NERDY to Me network, and answers to frequently asked questions: click here.
Anyone who is engaged in advocacy in one of the priority health conditions, excited to learn about medical research, and willing to make the full commitment to the six week program is encouraged to apply by emailing Sarah DiGiovine at [email protected].
Still curious? Hear from past advocates about why they found the Talk NERDY to Me training so valuable, or check out these spotlight features on former Talk NERDY to Me trainees:
- Patty Peterson: Patty Peterson reflects on her patient advocacy journey
- Marlene Klein: Patient-advocate reflects on the importance of AMD Awareness Month
- Debbe McCall: Becoming your own patient-advocate
- Jim and Geri Taylor: Research advocacy training empowers patients and caregivers
- Terrie Montgomery: How a woman with Alzheimer’s disease lives every second